Ally Parkes was 31 with a two-yr-outdated and a newborn when health professionals found out she had a brain tumour she had been residing with for 10 many years.
The 16-hour surgical procedure to take away it has still left her deaf in 1 ear and with partial facial palsy and stability challenges. She had to learn again how to wander, stand up and sit down, and journey a bicycle.
But the mother of two from Bishop’s Stortford, who works as an NHS occupational therapist, has utilised her traumatic expertise to produce a novel that she hopes will enable other people faced with life-shifting troubles.
No Extended Me, which was released on Amazon in both equally e-e-book and paperback format on September 21, charts the journey of Chloe Richards in a story loosely based on Ally’s personal activities.
“It really is not an autobiography, but I wished it to be about the journey so I made a fictional character, but who wasn’t married or had youngsters. The story she goes on is related to my personal, but I wished it to be all about the unique,” mentioned Ally, now 39.
In the aftermath of surgical procedure to take away the benign tumour, Ally endured infinite consultations and healthcare facility appointments, and the emotional trauma she endured stayed with her.
“When points settled down I realised I however had rather a whole lot of emotion in me about what had took place and a good friend mentioned I must produce it down. So I wrote about the toughest bits I had to go by means of with the thought of turning it into a e-book.
“I was lucky that my youngsters were two and a few months outdated at the time and they gave me the determination to get by means of it, but I wished to different them and my spouse from the fictional story as I felt I had to defend them, but it will be a memoir for them.”
Ally life with spouse Duncan, 41, in Wentworth Travel. Their young children, Keiran and Livvy, are now 11 and eight, and show up at St Mary’s Catholic School St Michael’s CofE Key in Stortford.
The e-book is self-published. “I have not composed it to turn out to be a multi-million-pound-selling writer, it was just my remedy to get the stuff in my head out onto paper.”
She also suffers persistent tiredness, and it is these much less obvious implications that she hopes to raise awareness of.
“If another person else picks up my e-book and feels how I felt, if my e-book can achieve 1 individual then that is a optimistic. That is why it can be referred to as No Extended Me as it can be no more time the life I had regarded.
“I am so happy to have composed it. And for me, a technophobe! I formatted it all, employed a skilled editor, made a web page and put it on Twitter – it can be been an astounding journey.”
Ally was 8 months’ pregnant with Livvy when she first recognized something wasn’t correct.
“I’d been accomplishing a hypnobirthing CD, and rolled onto my correct aspect and realised I couldn’t listen to out of my correct ear. I went to the health professionals just after I commenced to get tinnitus and then had some hearing and stability checks. They believed it was labyrinthitis [irritation of the inner ear].
“They did an MRI just after I’d had the infant and that is when it was found out. The tumour was pretty significant. I’d in all probability had it for about 10 many years and it was life-threatening. Inside of two months I was in surgical procedure.
“It had developed alongside the ear canal and loaded the house in my brain and had commenced to compress on my brain stem, which was the risk.”
The surgical procedure still left her deaf in her correct ear and initially she was totally paralysed on her correct aspect. Several far more functions adopted and over the system of a yr her affliction improved, but the partial facial palsy remained, alongside with stability challenges.
“I had to learn to compensate for no stability, everything had to recalibrate – I had to learn to wander, stand up and sit down again, journey a bicycle. I had to eat puréed food items by means of a straw. But the NHS has been astounding and if it wasn’t for them I wouldn’t be below.”
Ally, who attended Leventhorpe School in Sawbridgeworth, works with older folks struggling from dementia in her job as an NHS occupational therapist.
“As an OT we enable folks live and cope and alter to ailments or injuries, so for me it was pretty substantially a scenario of practising what I preach!” she mentioned.
“I do come to feel grieved for the individual I was and how I seemed, but at the very same time I am braver, harder and wiser and have substantially far more appreciation of life, and, for the most component, that is what I hold on to.
“I however have a life – and plenty of folks never get that prospect.”